365 Days with Fibroids – What I’ve Learned

By |2018-11-26T14:46:07+00:00September 10th, 2018|Featured, Health, Wellness|12 Comments

A year ago I went to the doctor and decided to find out what was wrong with me.  For the past three and a half years I suffered from heavy bleeding, low energy levels, and depression.  In that time I ended up not being able to work, I couldn’t date, I lost friendships and I lost myself – all in the name of Fibroids.

I can’t really say what drove me to go to the doctor but something in me clicked.  I had to find out what was wrong with me.

Tomorrow will mark a full year being diagnosed with Fibroids.

These last 365 days were peppered with doctor visits and procedures, tears and a range of emotions.  I’ve shared a timeline of my doctor visits so far, but for this anniversary I chose to focus on the most important things I’ve learned and the ways I’ve grown during this journey.

 

 

I became my own doctor

None of the doctors have given a shit about me.  Not one.

I’ve convinced myself the attitude I’ve faced is because they’re men and they don’t have to bleed from their penis and face benign tumors growing in their stomachs.

Becoming my own doctor meant looking up natural remedies, looking up diets, finding a good mix of supplements, and more.

I’m ready to don my white coat and stethoscope.  

 

Support (or lack thereof) surprised me

My old doctor told me something when I was dealing with depression and anxiety – people will dismiss anything they can’t see or they think isn’t “real”.   If you have a broken arm people can see it and connect to it.

Fibroids is something people can’t understand.  They don’t get that your bleeding isn’t manageable cause to them “it’s just a period”.   In the past year I have fainted/blacked out multiple times and now I don’t bother telling anyone.  Why?

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Cause no one cares. 

That stated, it will surprise you who does care.  Support will come from the most unexpected places but be ready for:  it’s just Fibroids, get over it.

It’s time for me to live

I actually came to this realization while writing this post.  Fibroids robbed me of many experiences during these recent years.   I couldn’t go anywhere because I was constantly bleeding or just walking to the end of my street would leave me panting and tired.

Dating became awkward and uncomfortable; try bringing up Fibroids on a date….um no.   My career suffered too which is one of the reasons why I’m always talking about being broke.

This shit changed my life and not in a good way.

This journey left me emotionally, mentally and physically drained and I will be honest, I gave up many times.  But something clicked inside of me towards the end of these 365 days and I have started to think of my future with and/or beyond Fibroids.

I felt like I wasn’t worthy of having a future – I wasn’t worthy of having a family, of wanting to have my own place, traveling, having friends…none of that.  That’s how fucked up my mental state got.

Now I realize whether my treatment is successful or not, I deserve good things.  I deserve to live life and have more than I’ve been having.

What’s next?

My most recent consultation was last week where I chose a certain type of treatment as my next step.

I wasn’t confident about any of the options presented to me.  There’s not enough research about Fibroids and I was not impressed with the procedures offered for my case.

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I can’t complain (too much) as it’s one step closer to a new chapter.  Aside from choosing a course of treatment, I do know I want to be blogging about my recovery, my life after fibroids and hopefully helping more people through their journey.

Keep talking…

Since September marks a full year of me being diagnosed I’ll be chatting about it on my social media.  Don’t be shy, join in!

I know it might seem like “just a thing”, but it can be life changing.  Black women are especially prone to Fibroids and I bet you if you ask a black woman in your family they have had or have them.

Not everyone has life-changing symptoms but a lot of women do so don’t be that person who thinks just because it’s not a broken arm it doesn’t matter.

It matters.


Glad you liked this post!  The fun doesn’t have to stop. Here are a few of my fav posts!

Did you know I also have a small blogger + biz owner tips website?  Here are a few ways you can connect with me over at The Coco Creativ:

12 Comments

  1. Megan September 10, 2018 at 10:44 am - Reply

    This sounds like a really awful time, so frustrating that the doctors were so useless too! I’m glad to hear you’ve got a treatment opportunity though, it’s definitely the start of a positive move forward. Thanks for sharing your story!

    Megan // https://pixieskiesblog.wordpress.com

  2. Natonya September 10, 2018 at 4:25 pm - Reply

    I always heard of fibroids but never understood the diagnosis. Thanks for educating us from the
    mental and emotional perspective. I think it’s special you’re sharing your journey with us because you are helping others. I wish you well along your way and will you in my prayers.

    Natonya | http://www.justnatonya.wordpress.com

  3. Susanne September 10, 2018 at 4:33 pm - Reply

    Like you said, it’s important to keep talking about fibroids and raise awareness. I am glad that you shared your story – and I hope that things are going to become easier and more manageable in the future. Xx

  4. Bexa September 10, 2018 at 5:12 pm - Reply

    It sounds like you have had a tough year and it’s such a shame that the doctors haven’t been much help. It’s great that you are using your blog as a way to educate others and spread awareness on fibroids. I’m sure your experience will help others suffering too. Keep sharing, hopefully you will get the right treatment soon. Sending you hugs! <3 xx

    Bexa | http://www.hellobexa.com

  5. Karen Lanzetta September 10, 2018 at 10:24 pm - Reply

    ((Hugs))
    Fibroids are evil!
    I suffered from them for many years and ended up with severe anemia and some miscarriages and crap.
    At some point I had a myomectomy where they removed a bunch of them and I had a successful pregnancy.
    Of course the fibroids came back and eventually I had a uterine embolization which fixed the problem by pushing me into menopause. (I was 50 by that time so that was ok with me)
    I have been without bleeding and without fibroids for two years now and it’s heaven
    Hang in there! I hope you find the right treatment for you and a good Dr to help you make your treatment choices.
    There is life with and after fibroids!

    • Olli September 14, 2018 at 10:48 am - Reply

      Thank you. I’m looking forward to my life after fibroids!

  6. Shayla September 11, 2018 at 11:49 am - Reply

    Hey girl heyyyy we are fibroid Twins 🤗 I’ve had fibroids my whole life.. that’s one reason my kids are 10 years apart🤷🏾‍♀️ I’m glad that you are speaking up. I never really spoke about this I knew a lot of the women in my family had them so it was just an awful cross I had to bear and in 2000 there just wasn’t a lot of material of support. When I started to take care of my fitness, get therapy and take care of my a lot of the fibroid issues disappeared. Sometimes they shrink away. I had one that shrinks and comes back.. I have name it Phil 🤷🏾‍♀️( Phil.. fills a piece of my uterus… female reproductive humor…it’s gonna be big!🤣🤣🤣) but yeah you’re not alone anytime you want to take to me or send a message to Phil the fibroid let me know!

    • Olli September 14, 2018 at 10:47 am - Reply

      looool at Phil!! I’m hoping through diet and eventually fitness it will help some of the issues I have. My next post about this will talk about the procedure I’ve selected but honestly i don’t want to do it. But reading that your issues got better through lifestyle changes gives me hope. It’s 2018 and I’m not sure there’s much progress tbh. In my support groups there are women who have been dealing with this for YEARS and they come across like it’s the same old song…

  7. Lucia September 11, 2018 at 6:00 pm - Reply

    I’m thankful you have decided to share something so personal. It’s really important for all women to understand what Fibroids can mean, for them and their daughters etc. I had never really fully understood until now, but you are right it does matter.

    Also I wish you all the best in getting the best treatment available to you.

  8. Sarah September 29, 2018 at 8:31 am - Reply

    I’m sorry you’re going through this, but thank you for sharing your story and raising Fibroid awareness. You definitely deserve good things & I hope you find the best treatment for you xx

    • Olli October 7, 2018 at 3:21 pm - Reply

      Thank you for your supportive words. I hope to do more in the new year and either have a dedicated platform or be involved in the Fibroids community at a larger scale.

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